Skip to Main Content
InterSystems Ideas
We love hearing from our users. Tell us what you want to see next and upvote ideas from the community.
* Bugs and troubleshooting should as usual go through InterSystems support.
Status Will not implement
Created by Guest
Created on Oct 9, 2021

Support citizens to sell / donate their health data

Create a platform (IRIS for Health) and app that would support citizens to sell/donate their medical data. This would be a combination of the Provider & Payer data (federal patient access and interoperability rules), device data and other data a citizen may have such as genetic data (23 and me etc). The data would be pseudonymised / anonymised as it leaves the citizens device and users would receive a payment or notification that a payment was made to charity for the data. This could create a very large data set of great commercial and research value to Health Science and research institutions and cuts out the providers and consent issues as the patient themselves elected to do it

  • ADMIN RESPONSE
    Jan 22, 2024

    Thank you for submitting the idea. Based on information from our experts the status of your idea was changed to "Will not implement". Please look for details in the comments on the idea. Good luck!

  • Admin
    Vadim Aniskin
    Reply
    |
    Jan 22, 2024

    There is a comment on this idea from an InterSystems employee.

    The idea was transferred to “Will not implement” since the author did not respond to this comment for several months.

    If the author responds to this comment, the status of this idea may be changed.

  • Admin
    Vadim Aniskin
    Reply
    |
    Nov 15, 2023

    @Kenneth Connaugthon, you have a comment on your idea. Please answer it to help your idea to be promoted.

  • Patrick Jamieson
    Reply
    |
    Nov 15, 2022

    InterSystems has a great deal to lose from a reputation standpoint by selling even de-identified data. A non-profit might be able to make a business around this ideas.