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InterSystems Ideas
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Status Clarification required
Created by Guest
Created on Oct 9, 2021

Support citizens to sell / donate their health data

Create a platform (IRIS for Health) and app that would support citizens to sell/donate their medical data. This would be a combination of the Provider & Payer data (federal patient access and interoperability rules), device data and other data a citizen may have such as genetic data (23 and me etc). The data would be pseudonymised / anonymised as it leaves the citizens device and users would receive a payment or notification that a payment was made to charity for the data. This could create a very large data set of great commercial and research value to Health Science and research institutions and cuts out the providers and consent issues as the patient themselves elected to do it

    Nov 29, 2023

    Thanks for submitting the idea. Clarification on your idea was requested in the comments below. Please answer the clarifying question(s) to promote your idea.

  • Admin
    Vadim Aniskin
    Nov 15, 2023

    @Kenneth Connaugthon, you have a comment on your idea. Please answer it to help your idea to be promoted.

  • Admin
    Patrick Jamieson
    Nov 15, 2022

    InterSystems has a great deal to lose from a reputation standpoint by selling even de-identified data. A non-profit might be able to make a business around this ideas.